December 18th 2019
It has been 2+ years since I posted on this blog, I do not know if anyone will view it again, but just in case somebody searches those fateful words "synovial sarcoma" and happens to stumble across my blog I would like to give hope as I am soon to be 3 years cancer free in March 2020. Every scan since my operation in February 2017 has been clear with no signs of recurrence. I wish this be the case for everyone who has such an encounter. I still get what I can only describe as probable phantom pain in my right knee - the site of my cancer, more noticeable after being on my feet for long periods (I work 13 hour shifts), my skin is perfectly intact and my scar is now a white/silver line, barely noticeable but it never really bothered me anyway. I am now having check ups on my lungs every 6 months instead of 3, the anxiety when a scan is upcoming is still there and when waiting for the results but the rest of the time it is out of my mind and I am living a fulfilled life, always grateful. Best wishes to anyone who may read this for whatever reason you come across it.
Hello, Just found your post on macmillan cancer group, and tapped your link. I have all the same symptoms and go for my ultrasound tuesday. Hopefully it's not sarcoma, but maybe it is. Thank you so much for sharing. Now I will go back and read your previous posts. Glad you are well
ReplyDeleteI hope it wasn't sarcoma in the end but if it was I hope you have been coping well, especially through these crazy times of covid etc. Best wishes for you and thank you for your lovely comment :-)
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